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We're 'all in' - are you?
We are tackling the big challenges.
Professional recognition and development support.
Securing budget.
Demonstrating impact.
We are here for patient engagement professionals.
Regardless of background – industry, advocacy group, solutions provider, or other.
Regardless of location.
Regardless of ‘seniority’.
Organisational Training & Development
Patient Engagement Frameworks
Career Progression
Expertise & Best Practice
Setting Industry Standards
Not-for-Profit
The ISPEP Hub: The Home for Patient Engagement Professionals
With unprecedented access to a global network of patient engagement professionals from industry, advocacy groups, CROs and more, plus case studies and dedicated discussion groups, there's something for everyone on the ISPEP Hub.
What does ISPEP offer?
You can create a win for the patients, a win for the industry, and a win for society – that's what I really believe we can do if we do patient engagement well.
- Rasmus Hjorth (James Lind Care), ISPEP Member
“There are so many people out there doing good stuff, and I love the concept of bringing professionals together. We are out there in what feels like a big landscape all alone, so to have the opportunity to be constantly engaging with like-minded people who are going through the same as you is incredibly powerful. Thank you to ISPEP for creating that space.”
– Professor Lara Bloom (The Ehlers-Danlos Society and Penn State College of Medicine), ISPEP Member
“The world is waking up. While pharma drags its feet, patients suffer the consequences. They don't have time for incremental improvements. For them, every extra day means unmet needs and dwindling hope. There’s no excuse for pharma playing it safe and staying in stale, outdated comfort zones. Indeed, doing things the old way is no longer prudent, with regulators increasingly expecting meaningfully patient-focused drug development.”
– Paul Simms (Impatient Health), ISPEP Expert in Residence
“The easy stuff’s been done. Now it’s up to us as a collective to bring what we know, share what we know, and come together to tackle the challenging stuff. And that’s the magic of ISPEP.”
– Robert Mitchell-Thain (PBC Foundation), ISPEP Member
“If you try to understand what it's like to live with a certain condition from many different aspects, then you can actually use those insights all the way from very early on; from developing your target product profile, through to clinical trials, then market access and beyond.”
– Liselotte Hyveled (Novo Nordisk), ISPEP Member
Check out our latest posts!
Check out our Fast Facts!
Fact:
“Many patient advocacy organisations today are led by professionals, are meaningful and empowered stakeholders in the development of treatments, and have a large impact on research” – Stein et al., 2018
Fact:
Patient partnerships have been found to be valuable throughout the research process, from planning research to conducting studies and disseminating results (PCORI, 2023).
Fact:
“More than 50% of doctors said that, all else being equal, they were more likely to prescribe medication from a pharma company they considered more patient-centric.” – Lubkeman, 2020
Fact:
“Many patient advocacy organisations today are led by professionals, are meaningful and empowered stakeholders in the development of treatments, and have a large impact on research” – Stein et al., 2018
Fact:
Patient partnerships have been found to be valuable throughout the research process, from planning research to conducting studies and disseminating results (PCORI, 2023).
Fact:
“More than 50% of doctors said that, all else being equal, they were more likely to prescribe medication from a pharma company they considered more patient-centric.” – Lubkeman, 2020
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