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We are here for patient engagement professionals.
Regardless of background – industry, advocacy group, solutions provider, or other.
Regardless of location.
Regardless of ‘seniority’.
We are tackling the big challenges.
Professional recognition and development support.
Securing budget.
Demonstrating impact.
We're 'all in' - are you?
What does ISPEP offer?
Not-for-Profit
The ISPEP Hub: The Home for Patient Engagement Professionals
With unprecedented access to a global network of patient engagement professionals from industry, advocacy groups, CROs and more, plus case studies and dedicated discussion groups, there's something for everyone on the ISPEP Hub.
Organisational Training & Development
Patient Engagement Frameworks
Career Progression
Expertise & Best Practice
Setting Industry Standards
You can create a win for the patients, a win for the industry, and a win for society – that's what I really believe we can do if we do patient engagement well.
- Rasmus Hjorth (James Lind Care), ISPEP Member
“There are so many people out there doing good stuff, and I love the concept of bringing professionals together. We are out there in what feels like a big landscape all alone, so to have the opportunity to be constantly engaging with like-minded people who are going through the same as you is incredibly powerful. Thank you to ISPEP for creating that space.”
– Professor Lara Bloom (The Ehlers-Danlos Society and Penn State College of Medicine), ISPEP Member
“The world is waking up. While pharma drags its feet, patients suffer the consequences. They don't have time for incremental improvements. For them, every extra day means unmet needs and dwindling hope. There’s no excuse for pharma playing it safe and staying in stale, outdated comfort zones. Indeed, doing things the old way is no longer prudent, with regulators increasingly expecting meaningfully patient-focused drug development.”
– Paul Simms (Impatient Health), ISPEP Expert in Residence
“The easy stuff’s been done. Now it’s up to us as a collective to bring what we know, share what we know, and come together to tackle the challenging stuff. And that’s the magic of ISPEP.”
– Robert Mitchell-Thain (PBC Foundation), ISPEP Member
“If you try to understand what it's like to live with a certain condition from many different aspects, then you can actually use those insights all the way from very early on; from developing your target product profile, through to clinical trials, then market access and beyond.”
– Liselotte Hyveled (Novo Nordisk), ISPEP Member
Member POVs and Publications
Community Snapshot
4,000 followers globally participate in the ISPEP community.
>1,000 members use the ISPEP Hub daily and access resources.
120k people participated in Patient Engagement Day 2025 aligned under the theme: #CarryTheChange.
Series 7 of the PEP Talks podcasts is being recorded to add to more than 30 personal patient engagement career journeys for members to learn from.
International Patient Engagement Day campaigns – 100k people participated at the inaugural session in 2025; it is anticipated that this will double in 2026 alongside the first ‘IMPACT’ nonprofit event hosted by ISPEP on October 15th 2026.
400 healthcare organisations represented across the community.
25 corporate sponsors supporting ISPEP’s mission and programmes.
Five annual bursaries helping widen access and participation.
Global advisory board representing industry, contract research organisations, biotechnology, patient experts and agency experts.
Since founding, ISPEP and sponsors have won two awards and have been shortlisted for one award in recognition of the work of the community to elevate patient engagement practices and support educational training and capabilities development across the life sciences sector.
Chairing an average of three conferences per year including at Reuters, Patients As Partners, MPE Summit,Patient World Congress, SCOPE -- and provision of pre-event workshops/masterclasses at CPO Summit, MPE Summit and PE Forum.
View more here.
Events
Patient Empowerment Congress
The two-day Congress will bring together stakeholders across healthcare, pharmaceuticals, patient advocacy, research, and policy, as well as patients and caregivers themselves. It will explore the growing importance of patient empowerment and its implications for both patients and the life sciences industry, with the goal of fostering meaningful dialogue, collaboration, and more patient-centered healthcare systems.
Building Effective Patient Advisory
Councils
Evidence Based Advocacy
Check out this relevant article from Marie Ennis-O'Connor developed through our PO Bursary
Our Sponsors
Thank you to our
fantastic sponsors!
